Patient-First Approach to Treating Orphan and Rare Disorders Optimizes Care, Improves Patient Experience
By: Donovan Quill
In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people nationally. While there may be as many as 7,000 rare diseases, the total number of Americans living with a rare disease is estimated at between 25-30 million.
During Patient Experience Week (PX Week), April 26-30, 2021, an annual event to celebrate healthcare staff and others impacting the patient experience every day, it’s important to focus on maximizing therapeutic opportunities for the treatment of orphan and rare disorders. These patients face a unique set of challenges, such as access to affordable, adequate and accessible health care coverage to maintain their health.
PX Week is an excellent time to celebrate accomplishments, re-energize efforts and honor the people who impact the patient experience every day—and shine a light on healthcare organizations that put the orphan and rare disease patients at the center of care.
Once such organization, Optime Care, a nationally recognized pharmacy, distribution and patient management organization, offers a patient-first care model that is designed to effectively address compliance and adherence to enhance the patient experience, mitigate costs and improve outcomes. Their targeted programs, services and specialized expertise effectively transcend the limitations of traditional, legacy care organizations that often fail to fully address the needs of these patients.
Dedicated provider organizations, teams and individuals, including nurses, physicians, support staff, executive professionals, caregivers, families and communities improve quality care across the entire U.S. healthcare system.